Patients
Living with aPAP
People living with aPAP are often misdiagnosed despite the availability of a simple blood test. Once they are diagnosed, treatment options are currently limited.
Savara is committed to developing a non-invasive pharmacologic treatment option for people living with aPAP.
Diagnosis and Treatment Experiences of aPAP Patients: Poster Presentation
Savara talked to patients living with aPAP to learn more about their challenges and needs. The learnings were shared in a poster presentation at the 2024 NORD Summit.
Download the Poster
Behind the Mystery: Meet Eric
Eric was misdiagnosed, but once he connected with aPAP expert Dr. Bruce Trapnell, a pulmonologist at Cincinnati Children’s Hospital, his life changed.
Watch Video
Kelsea’s Story
aPAP changed Kelsea’s life. She explains why a new treatment option is needed.
Watch VideoPatient Resources
aPAP ClearPath™
aPAP ClearPath™ is a simple, accurate, and noninvasive blood test that can help confirm or rule out aPAP at no cost to you or your doctor. Learn how to talk to your doctor if you suspect aPAP.
Learn how your doctor can request the testSavara aPAP Research Updates
Patient Advocacy Organizations
Here are a few resources that can help you find more information about aPAP, pulmonologists, and community.
PAP Foundation
PAP Foundation is a nonprofit patient advocacy organization dedicated to finding a cure and improving the lives of people living with PAP. Through advocacy and collaboration, they promote research on PAP and provide support for PAP patients, healthcare professionals, and the public.
Learn More
National Organization for Rare Disorders (NORD)
NORD builds community and creates a lasting impact by improving the well-being of people with rare diseases by driving advances in care, research, and policy. Their website includes a PAP Rare Disease Report and Video.
Learn More
American Lung Association
Founded more than 120 years ago, the American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through education, advocacy, and research. Their website includes a dedicated section about PAP, including information for the newly diagnosed and how to find a pulmonologist.
Learn More
International Patient Organisation for Primary Immunodeficiencies (IPOPI)
IPOPI is a non-profit international patient organization dedicated to improving awareness, access to early diagnosis, and optimal treatments for primary immunodeficiency patients worldwide through global collaboration. They have created information about aPAP including a webinar.
Learn More
Autoimmune Association
The Autoimmune Association is the world’s leading nonprofit organization dedicated to autoimmune awareness, advocacy, education, and research. They have information about aPAP on their website.
Learn More
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